Cure Duchenne
Cure Duchenne
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About this organization
Mission
CureDuchenne is committed to improving the lives of everyone affected by Duchenne muscular dystrophy (DMD) through accelerating research to find the cure, improving care and empowering the Duchenne community. From creating the first Duchenne-specific physical therapy education program and enabling human clinical trials for the first-ever FDA approved drug for these patients, to launching a supplemental newborn screening initiative, we believe in tackling Duchenne from every angle. Duchenne is a 100% fatal genetic disease and the most common form of muscular dystrophy, which affects mostly boys. There are over 300,000 patients worldwide and 15,000 in the US.
About
Cure Duchenne was organized in 2003 with a mission to fund research necessary to find a cure for Duchenne muscular dystrophy, and improving the care and health of Duchenne muscular dystrophy patients.
Interesting data from their 2019 990 filing
In the filing, the mission of the non-profit is noted as “Cure duchenne is a not-for-profit organization dedicated to coordinating and funding research necessary to find a cure for duchenne muscular dystrophy, increasing public awareness for duchenne muscular dystrophy, and improving their care and health.”.
When referring to its responsibilities, they were outlined as: “Coordinating and funding research necessary to find a cure for duchenne muscular dystrophy. also, improving the care and health of duchenne muscular distrophy patients.”.
- The state in which the non-profit is legally registered to operate is CA, as per legal records.
- The filing documents the non-profit's address in 2019 as 1400 QUAIL STREET STE 110, NEWPORT BEACH, CA, 92660.
- According to the non-profit's form, they have 19 employees on their payroll as of 2019.
- Is not a private foundation.
- Expenses are greater than $1,000,000.
- Revenue is greater than $1,000,000.
- Revenue less expenses is $498,551.
- The organization has 12 independent voting members.
- The organization was formed in 2003.
- The organization pays $1,634,955 in salary, compensation, and benefits to its employees.
- The organization pays $837,776 in fundraising expenses.
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