Cure Gm1 Foundation
Cure Gm1 Foundation
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About this organization
Mission
The Cure GM1 Foundation is dedicated to hope and to directly funding research for a cure for GM1 Gangliosidosis/GM-1 Gangliosidosis, a lysosomal storage disease that attacks the brain and spinal cord and is always fatal in children. GM1 is a progressive and degenerative condition with an extremely broad and debilitating array of symptoms and complications. This nonprofit organization was founded by parents of children who suffer from GM1 who seek to save the lives of all those who suffer from this wretched condition.
About
Funded a mouse natural history at the Jackson Laboratory and a next generation AAV gene therapy program at UCSF. Conducted the second GM1 symposium.
Interesting data from their 2020 990 filing
The filing clearly states the mission of the non-profit as “See schedule o.the purpose of the organization is to raise funds for medical research for a rare disease called gm1 gangliosidosis that has no cure or treatment other than comfort measures and symptom management. promising research exists, but lacks funding. the organization hopes to unit families of those who suffer from this disease and their supporters by fundraising for a cure.”.
When outlining its functions, they were explained as: “See schedule o. the purpose of the organization is to raise funds for medical research for a rare disease called gm1 gangliosidosisthat has no cure or treatment other than comfort measures and symptom management. promising research exists, but lacks funding. the organization hope to unite families of those who suffer from this disease and their supporters by fundraising for a cure.”.
- In compliance with legal regulations, the non-profit has reported their state of operation as CA.
- The filing records the non-profit's address for 2020 as 1492 POSEN AVE, ALBANY, CA, 94706.
- As of 2020, the non-profit's form reports a total of 1 employees.
- Is not a private foundation.
- Expenses are between $100,000 and $250,000.
- Revenue is between $250,000 and $500,000.
- Revenue less expenses is $293,341.
- The organization has 5 independent voting members.
- The organization was formed in 2014.
- The organization pays $33,844 in salary, compensation, and benefits to its employees.
- The organization pays $4,062 in fundraising expenses.
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