Mid-Atlantic Connection for Pku Allied Disorder Inc.
Mid-Atlantic Connection for Pku Allied Disorder Inc.
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About this organization
Revenue
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Expenses
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Interesting data from their 2019 990 filing
Provide information and support for people with phenylketonuria (pku) or an allied disorder and for their families and support pku research.
- Revenue reported was $35,959.
- Expenses reported were $41,951.
- Other expenses reported $25,601.
- The non-profit reported a excess or deficit for -$5,992.
- Other compensation reported was $0.
- Contributions, gifts, and grants reported were $35,959.
- The non-profit filed a copy of the returns in ["NJ", "NY", "OH", "PA"].
Accomplishments
- Provide a grant to national pku alliance research fund to support phenylketonuria (pku) research to benefit people with pku with the ultimate goal of finding a cure for pku. national pku alliance funded research projects using our grant and grants from other pku organizations. Expenses $0.
- Organize and two events where pku families can come together to meet other pku families, meet pku product suppliers, to share experiences and exchange ideas, learn about new medical foods and other products while raising money for pku research. more than 200 people attended our events. Expenses $0.
- Conduct cooking demonstrations, picnics and other events to bring pku families together to learn about living with pku and the challenges of the very strict low protein diet required for people with pku and for those families to share ideas and experiences. more than 150 people attended our events. Expenses $0.
- Purchase and gather supplies for newborns with pku to be given to their parents. these gifts contain information, equipment and supplies that parents will need to control the very strict low protein diet that their newborn must adhere to to keep from having severe brain damage. provide information and support to pku mothers-to-be to help them control their strict pku diet during pregnancy. Expenses $0.
- Provide a grant to university hospitals to support the ohio pku camp where children with pku learn to handle their own dietary requirements from profesionals in a camp setting. Expenses $0.
- Provide a grant to national pku news to be used to expand their food list for people with pku. this list is used by people with pku to calculate their daily intake of phenylalinine so that they can maintain proper blood phe levels and avoid severe brain damage. Expenses $0.