New York City Hemophilia Chapter
New York City Hemophilia Chapter
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About this organization
Mission
THE ORGNANIZATION CONDUCTS A VARIETY OF ACTIVITIES DESIGNED TO EDUCATE, INFORM AND EXPAND RESEARCH AND KNOWLEDGE, AND GENERALLY IMPROVE THE WELL BEING OF PEOPLE AFFECTED BY BLEEDING DISORDERS.
About
THE ANNUAL NEW YORK CITY HEMOPHILIA WALK RAISES AWARENESS OF BLEEDING DISORDERS WITHIN AND OUSTIDE OF THE COMMUNITY. THE ANNUAL NEW YORK CITY HEMOPHILIA WALK RAISES AWARENESS OF BLEEDING DISORDERS WITHIN AND OUTSIDE OF THE COMMUNITY. IT ATTRACTS THOUSANDS OF PARTICIPANTS,GARNERS MEDIA ATTENTION, AND RAISES CRITICAL FUNDS FOR PROGRAMS AND SERVICES. NYCHC EDUCATION DAY BRINGS PEOPLE AFFECTED BY BLEEDING DISORDERS TOGETHER FOR CRITICAL LEARNING, SHARING, AND SUPPORT. THE DAY ATTRACTS MORE THAN 300 AFFECTED INDIVIDUALS. SESSION TOPICS INCLUDE MEDICATION ADHERENCE, DEALING WITH INHIBITORS (IMMUNE RESPONSE TO MEDICATION), ISSUES FACING WOMEN WITH BLEEDING DISORDERS, ACCESS TO CARE INCLUDING INSURANCE, LIFE TRANSITION ISSUES FOR AFFECTED INDIVIDUALS AND CARETAKERS, AND MANY MORE. THIS EDUCATION LEADS TO BETTER ACCESS TO CARE, BETTER SELF-CARE, AND IMPROVED OUTCOMES. NYCHC ALSO PROVIDES PROGRAMS AND SERVICES DESIGNED TO PROVIDE SUPPORT TO SPECIFIC POPULATIONS WITH THE COMMUNITY. FOR EXAMPLE, DAD IN ACTION IS GEARED TOWARDS DADS IN THE COMMUNITY WHO EITHER HAVE A BLEEDING DISORDER OR HAVE CHILDREN WITH A BLEEDING DISORDER; CONNECTIONS IS GEARED TOWARDS FAMILIES WHO ARE EITHER NEW TO HEMOPHILIA, NEW TO BLEEDING DISORDERS, OR BOTH.
Interesting data from their 2020 990 filing
According to the filing documents, the non-profit's mission is defined as “The new york city hempohilia chapter (nychc) is a not for profit 501(c)(3) organization incorporated in 2009 to addreaa the needs of the bleeding disorder community in the greater new york city area. nychc's mission is to foster a sense of community amongst people affected by bleeding disorders, and to assist them and their families through information, educetion, advocacy shared experiances and community support.”.
When referring to its tasks, they were referred to as: “The orgnanization conducts a variety of activities designed to educate, inform and expand research and knowledge, and generally improve the well being of people affected by bleeding disorders.”.
- The non-profit's state of operation has been legally reported as NY.
- The total number of employees reported by the non-profit on their form for 2020 is 6.
- Does not operate a hospital.
- Does not operate a school.
- Does not collect art.
- Does not provide credit counseling.
- Does not have foreign activities.
- Is not a donor-advised fund.
- Is not a private foundation.
- Expenses are between $500,000 and $1,000,000+.
- Revenue is between $500,000 and $1,000,000+.
- Revenue less expenses is $71,731.
- The CEO compensation package within the organization is not determined through a thorough evaluation and endorsement by a neutral source.
- The organization has 0 independent voting members.
- The organization was formed in 2008.
- The organization has a written policy that addresses conflicts of interest.
- The organization is required to file Schedule O.
- The organization pays $311,944 in salary, compensation, and benefits to its employees.
- The organization pays $108,733 in fundraising expenses.
- The organization has minutes of its meetings.
- The organization has fundraising events.