EB Research Partnership
EB Research Partnership
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About this organization
Mission
Founded in 2010 by a group of dedicated parents and close friends Jill and Eddie Vedder of Pearl Jam, EB Research Partnership (EBRP) is the largest global nonprofit dedicated to funding research aimed at treating and ultimately curing Epidermolysis Bullosa, a group of devastating and life-threatening skin disorders that affect children from birth. Individuals with EB lack critical proteins that bind the skin's two layers together. Without these proteins, the skin tears apart, blisters, and shears off leading to severe pain, disfigurement, and wounds that may never heal.
Interesting data from their 2020 990 filing
The filing outlines the non-profit's goal as “Eb research partnership is the largest organization dedicated to funding research for treatments and a cure for epidermolysis bullosa, a group of devastating and life threatening genetic skin disorders that affect children from birth.”.
When explaining its purpose, the activities were outlined as: “To fund research for treatments and a cure for epidermolysis bullosa.”.
- As per legal reporting requirements, the state of operation for the non-profit is NY.
- The non-profit's address for 2020 is listed as 132 EAST 43RD ST NO 432, NEW YORK, NY, 10017 in the filing.
- As per the non-profit's form, they have 4 employees as of 2020.
- Is not a private foundation.
- Expenses are greater than $1,000,000.
- Revenue is greater than $1,000,000.
- Revenue less expenses is $4,295,502.
- The organization has 33 independent voting members.
- The organization was formed in 2010.
- The organization pays $446,242 in salary, compensation, and benefits to its employees.
- The organization pays $553,829 in fundraising expenses.
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