The Marfan Foundation Inc.
The Marfan Foundation Inc.
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About this organization
Mission
The Marfan Foundation creates a brighter future for everyone affected by Marfan syndrome, Loeys Dietz, vascular Ehlers-Danlos and other genetic aortic conditions. We pursue the most innovative research and make sure that it receives proper funding. We create an informed public and educated patient community to increase early diagnosis and ensure life-saving treatment. We provide relentless support to families, caregivers, and healthcare providers. We will not rest until we've achieved victory - a world in which everyone with Marfan syndrome or other related conditions receive a proper diagnosis, get the necessary treatment, and live a long and full life.
About
Research - The Marfan Foundation tirelessly advances the research for treatments that save lives and dramatically enhance quality of life for people living with Marfan syndrome, Loeys Dietz, vascular Ehlers-Danlos, and other related conditions. Through its research grant program, the foundation has strengthened a growing community of expert researchers committed to victory over Marfan syndrome and other related conditions. The foundation urges the government to fund the research that will improve and save lives and facilitates the sharing of knowledge about these through conferences, symposia, and partnerships with governmental agencies and other health organizations.
Interesting data from their 2020 990 filing
According to the filing documents, the non-profit's mission is defined as “The marfan foundation creates a brighter future for everyone affected by marfan syndrome and other related conditions. the foundation works tirelessly to advance research, serve as a resource for families and healthcare providers, and raise public awareness.”.
When referring to its tasks, they were referred to as: “The marfan foundation creates a brighter future for everyone affected by marfan syndrome and other related conditions. - we pursue the most innovative research and make sure that it receives proper funding.- we inform the public and educate the patient community to increase early diagnosis and ensure life-saving treatment.- we provide relentless support to families, caregivers, and healthcare providers.- we will not rest until we've achieved victory in a world in which everyone with marfan syndrome or other related conditions receives a proper diagnosis, gets the necessary treatment, and lives a long and full life.”.
- The non-profit's state of operation has been legally reported as MD.
- According to the latest filing, the non-profit's address in 2020 is 22 MANHASSET AVENUE, PORT WASHINGTON, NY, 110502023.
- The total number of employees reported by the non-profit on their form for 2020 is 27.
- Is not a private foundation.
- Expenses are greater than $1,000,000.
- Revenue is greater than $1,000,000.
- Revenue less expenses is -$761,439.
- The organization has 17 independent voting members.
- The organization was formed in 1981.
- The organization pays $2,909,753 in salary, compensation, and benefits to its employees.
- The organization pays $670,233 in fundraising expenses.
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