American Syringomyelia Alliance Project, Inc.

American Syringomyelia Alliance Project, Inc.

Longview, TX 75601
Tax ID75-2245195

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About this organization








ASAP's mission: "to improve the lives of persons affected by Syringomyelia, Chiari Malformation and related disorders while we find the cure."


ASAP works toward accomplishing its mission by providing Support and Education, Increasing awareness, early identification of patients and understanding of symptoms, cause and management of the disorders. We accomplish this through newsletters, website, annual medical conference, support group meetings, and webinars.

Interesting data from their 2019 990 filing

According to the filing, the non-profit's mission is “To provide support for persons affected by syringomyelia and chiari malformation through support groups, information dissemination, conducting an annual medical conference, and distributing educational materials. also to raise funds to provide grants for medical research.”.

When referring to its actions, they were described as: “To provide support for persons affected by syringomyelia and chiari malformation while raising funds to conduct research for a cure.”.

  • According to the law, the state of operation reported by the non-profit is TX.
  • As per the filing, the address of the non-profit for 2019 is 21914 Field Green Dr, Cypress, TX, 77433.
  • According to their form, the non-profit as of 2019 has a total of 2 employees.
  • Does not operate a hospital.
  • Does not operate a school.
  • Does not collect art.
  • Does not provide credit counseling.
  • Does not have foreign activities.
  • Is not a donor advised fund.
  • Is not a private foundation.
  • Expenses are between $250,000 and $500,000.
  • Revenue is between $500,000 and $1,000,000+.
  • Revenue less expenses is $367,501.
  • The CEO's salary plan within the organization is not subject to review and endorsement by a neutral party.
  • The organization has 12 independent voting members.
  • The organization was formed in 1988.
  • The organization has a written policy that addresses conflicts of interest.
  • The organization is required to file Schedule B.
  • The organization is required to file Schedule O.
  • The organization pays $102,184 in salary, compensation, and benefits to its employees.
  • The organization pays $13,955 in fundraising expenses.
  • The organization provides Form 990 to its governing body.
  • The organization has minutes of its meetings.
  • The organization has a written whistleblower policy.
  • The organization has fundraising events.
  • The organization has grants to organizations.
  • The organization's financial statements were reviewed by an accountant.

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